Plenty of Room at the Table: The Case for Inclusive Research
Plenty of Room at the Table: The Case for Inclusive Research
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Research for Social Change
The Method is the Message: Inclusive Research Today was the topic of the keynote address at the 17th ISSIDD World Congress held in Chicago in August of 2024. What is inclusive research and why is it important? Covering the 4 C's Community, Clarity, Creativity and Cooperation, the panel focused on the idea of “producing justice while producing research”. What is inclusive research and why is it important? Inclusive Research (ICR) represents movement away from the traditional research paradigm of the researcher being outside of or at arm’s length from the research subjects. Instead ICR seeks to be intentional and purposeful about including those who are experts in and have firsthand experience with the phenomenon under inquiry. It is a hermeneutical approach to research. The numbers plus narrative approach creates more impactful research and without the involvement of and engagement with people who have lived experience the full context of the phenomena is missed.
The motto nothing about us without us has been the call to action within the disability community and communities of marginalized and vulnerable populations since James Charlton's seminal work of the same title was published. Based upon the principle of full and complete participation, Research about the IDD experience should not be conducted exclusive of the voices, experiences, skills and contributions of people who experience IDD most directly. From the idea hermeneutical injustice to policies and practices that wrong and excluded researchers with intellectual disability, to a fresh look at Charlton's seminal publication in light of the DEI movement and beyond NOIRE examines the landscape of inclusive research and shares who is doing what with whom and why.
Research
Research
Models of Disability
A more recently developed approach to disability, the CDS viewpoint is closely associated with the social model of disability….
Inclusive Dissemination
Inclusive Dissemination
The March 2024 issue of Inclusion features an article by Wendy Parent-Johnson and Austin Duncan that looks at the role of inclusive practices in the academic setting of a UCED . For a closer look
https://doi.org/10.1352/2326-6988-12.1.75
Theories and Approaches
Origin Stories
Origin Stories
The work of Walmsley and Johnson predates the DEI movement by some 30 years NOIRE reviews their work and its intersectionality with other marginalized groups.
Challenges facing Inclusive Research
Challenges facing Inclusive Research
Inclusive research is not necessarily a new concept. Both participatory and emancipatory research models have peppered the landscape of research methodology for years. ICR's intersection with these long standing approaches to insight became part of the lexicon in 2003 and since that time....
The intersectionality of Inclusive research and Advocacy
The intersectionality of Inclusive research and Advocacy
"Self-Advocacy has been described as both a requirement and a result of incusive research. Additionally the process of becoming an inclusive researcher can be seen as self-advocacy for people with intellectual disabilities" Krueger, van Heume and van den Helder (2023).
The valued social role of the researcher
The valued social role of the researcher
Conducting and disseminating research that informs peers, the wider public and policy makers about and important phenomena is critical to our function society in general. Relevant research contributes to policy decisions, budgetary priorities and service delivery models. Being a co-researcher that is engaged in every part of the a study from development to incentivizing and recruiting participants phrasing survey questions interpreting findings is the epitome of a socially valued role as defined by Wolfensberger, which he asserts is critical to a full and equal place in ones community regardless of variations in form and function.
Self Determination
Self Determination
I want to go to the mall. Today I will spend the day outside at the park. My long-term goal is to complete my college degree and find employment as a software engineer. These are all goals thoughts and objectives we state for ourselves every day to one degree or another. Sadly, there is a segment of our population that continues to be deprived of this, what most would consider, a fundamental human right. The right to self-determination…
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