The Evolution of Support Coordination: A Historical perspective

Resources for further reading:

Amado, A., Smith, G., Larson, S., Roehl, A., Fortune, J., Fields, J., McBride, M. (2007). Redesigning case management services for people with disabilities in Minnesota: A report to the legislature (DHS-5062-ENG 4-07). Minneapolis, MN: Institute on Community Integration, University of Minnesota. Retrieved from http://rtc.umn.edu/docs/DHS-5062-eng

Barth, S., Lewis, S., and Simmons, T. (2020). Medicaid Services for People with Intellectual or Developmental Disabilities – Evolution of Addressing Service Needs and Preferences. Health Management Associates. Report to Medicaid and Chip Payment Access Commission. https://www.macpac.gov/wp-content/uploads/2021/01/Medicaid-Services-for-People-with-Intellectual-or-Developmental-Disabilities-%E2%80%93-Evolution-of-Addressing-Service-Needs-and-Preferences.pdf

Bogenschutz, M. D., Dinora, P. A., & Johnson, K. R. (2019). Case Management Workforce Supporting People With Intellectual and Developmental Disabilities: Indications of a New Frontier of the Workforce Crisis. Intellectual and developmental disabilities, 57(6), 499-511.

Brent, B., Kennedy-Lizotte, R., & Fay, M.L. (2018). Support Coordination Strategies that Impact Employment Outcomes and Services for Individuals Served by State Intellectual/Developmental Disabilities Agencies. Bringing Employment First To Scale, Issue 17. Boston, MA: University of Massachusetts Boston, Institute for Community Inclusion.

Chouinard, M. C., Bisson, M., Danish, A., Karam, M., Beaudin, J., Grgurevic, N., Sabourin, V., & Hudon, C. (2021). Case management programs for people with complex needs: Towards better engagement of community pharmacies and community-based organisations. PloS one, 16(12), e0260928. https://doi.org/10.1371/journal.pone.0260928

Centers for Medicaid and Medicare. (2017). Application for 1915 (c) Home and community-based waiver. HCBS Waiver Application version 3.5. Retrieved from http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Waivers/Home-and-Community-Based-1915-c-Waivers.html

Cooper, R. (2006). Survey of State Case management policies and practices, Alexandria, VA. National Association of State Directors of Developmental Disability Services. Retrieved from http://www.nasddds.org/uploads/documents/NASDDDS_CaseManagementPoliciesPractices_2006.pdf

Developmental Disabilities Rights and Assistance Act, PUBLIC LAW 106–402—OCT. 30, 2000 114 STAT. 1677.

Cooper, R., Brent, B., Bourne, M., Sowers, M., and Zlockie, J. (2018). National Association of State Directors of Developmental Disabilities Services "Medicaid and Case Management for People with Developmental Disabilities: Structure, Practice, and Issues".

Davis, S. (2018). In-Home Supports for the Developmentally Disabled Population: A Heuristic Phenomenological Study of SC’ Experiences. Proquest. Dissertation Walden University

Developmental Disabilities Rights and Assistance Act, PUBLIC LAW 106–402—OCT. 30, 2000 114 STAT. 1677.

Dodson T, Corrothers M, Rubin J, Vallentine, J, Yount ND, Sorra, J, Shaller, D. The Consumer Assessment of Healthcare Providers and Systems (CAHPS®) Home and Community-Based Services Survey Database 2024 Chartbook. (Prepared by Westat, Rockville, MD, under Contract No. GS-00F009DA/75Q80123F80005). Rockville, MD: Agency for Healthcare Research and Quality; January 2024. AHRQ Publication No. 24-0029

Dunst, C. J., & Trivette, C. M. (1989). An Enablement and Empowerment Perspective of Case Management. Topics in Early Childhood Special Education. https://doi.org/10.1177/027112148900800407

Friedman, C. (2023). Medicaid Home- and Community-Based Services Waivers for

People With Intellectual and Developmental Disabilities. Intellectual and developmental disabilities 61(4).

Hewitt, O., Langdon, P. E., Tapp, K., & Larkin, M. (2023). A Systematic Review and Narrative Synthesis of Inclusive Health and Social Care Research with People with Intellectual Disabilities: How Are Co-Researchers Involved and What Are Their Experiences? Journal of Applied Research in Intellectual Disabilities, 36(4), 681–701. https://doi.org/10.1111/jar.13100

Knox, M., Esteban, E. E., Hernandez, E. A., Fleming, M. D., Safaeinilli, N., & Brewster, A. L. (2022). Defining case management success: a qualitative study of case manager perspectives from a large-scale health and social needs support program. BMJ open quality, 11(2), e001807. https://doi.org/10.1136/bmjoq-2021-001807

Landon BE, Epstein AM. Quality Management Practices in Medicaid Managed Care: A National Survey of Medicaid and Commercial Health Plans Participating in the Medicaid Program. JAMA. 1999;282(18):1769–1775. doi:10.1001/jama.282.18.1769

Linz, M., McNally, P., and Wieck, C. (1989). Case Management: Historical, Current & Future. Brookline. Cambridge MA.

Maniates, H. 2024 Medicaid: The more you learn: Issue Brief Why did they do it that way? Home and community-based serviceshttps://medicaiddirectors.org/resource/why-did-they-do-it-that-way-home-and-community-based-services

Monoroe, K. (2021). Case managers’ empowerment of families and individuals with intellectual and developmental disabilities. School of Social and Behavioral Sciences A Dissertation.

O'Brien, L., and Randjelovic, I. (2020). International Models of Support Coordination and Local Area Coordination:  Evidence Review Report.

Oh, J., & Oh, S. (2017). Nurse Case Managers' Experiences on Case Management for Long-term Hospitalization in Korea. Asian nursing research, 11(4), 283–289. https://doi.org/10.1016/j.anr.2017.11.002

Shank, Nancy, "Developmental Disabilities Service Coordination in Nebraska" (2006). Nancy Shank
Publications. 3. https://digitalcommons.unl.edu/publicpolicyshank/3

Spitz B. A national survey of Medicaid case-management programs. Health Aff (Millwood). 1987 Spring;6(1):61-70. doi: 10.1377/hlthaff.6.1.61. PMID: 3556369.

Tahan, HM., Watson, A.C., Pinkney, P.V., (2015). What Case Managers Should Know About Their Roles and Functions: A National Study From the Commission for Case Manager Certification: Part 1. Professional case Management 20(6), 271-96. DOI 10.1097/ncm.0000000000000115.

U.S. Department of Health Education and Welfare. (1962). A proposed program for National Action to Combat Mental Retardation. https://eric.ed.gov/?id=ED024180

Thompson, Wojciak, Cooley2015 Through their lens: Case managers’ experiences of the child welfare system; Qualitative Social Workhttps://doi.org/10.1177/1473325015619667

Uittenbroek, R. J., van der Mei, S. F., Slotman, K., Reijneveld, S. A., & Wynia, K. (2018). Experiences of case managers in providing person-centered and integrated care based on the Chronic Care Model: A qualitative study on embrace. PloS one, 13(11), e0207109. https://doi.org/10.1371/journal.pone.0207109.

Weil, M., and Karls, J. (1985). Case Management in Human Service Practice. Jossey-Bass Publishing.